Monday, May 10, 2010

Calling fellow myasthenics....

Okay, to quickly give reflection on how things are going, it is like I am on a boat with rough waters, then calm, then, rough, then calm...such is life right? My eyes are definitely becoming more of a bother, I am losing strength and suffering more ocular effects than I have in quite some time. With that said, I can't complain much because I am starting to fall into more of a cookie cutter myasthenia pattern. More "normal" during the day, less so at night. Mornings continue to be tough, by that I mean mustering up the strength and stamina to get out of bed. The insomnia has subsided. I swear I went for 4 solid months of not sleeping an average of 2-3 nights per week. I'm glad that ship has sailed...knock on wood.

So, why the title? I have a really cool project in mind. I would like to invite other myasthenics to participate. Without giviing too much away, I want to create a PSA that really paints a picture of us as a whole while focusing on the snowflake aspect of this illness. If anyone is interested, please send me a message and I will connect with you to go over the info.

I hope spring is in full swing for all of you out there in cyberland. Stay strong! You are all in my thoughts.


  1. Im in let me know how I can help:) Insomnia sucks!!

  2. I"m in too! (What's a PSA?) I'm techologically challenged.
    Thanks for your kind comments on my post!

  3. I'm in. I've just added myself to your followers - does that give you a way to contact me?

  4. Ellen,
    can you email your pics to ?