Feelin' groovy..da, da, da, da

I just get so giddy when my IVIG does the trick! I am feeling awesome! Energy..ahhh, strength...ahhh, vision...YES! And, biggest news of all....my baby turns 4 on Wednesday. Cinco De Mayo! Happy Birthday Miss Cindy Sassafrass.

I am feeling blessed beyond words. I am coming up to one year with this mess of a disease and I can say today I am feeling just great. I hope and pray it last through to the next treatment. The weather is certainly helping. Cool enough during the day to keep the doors and windows open and warm enough at night to keep the windows open. The fresh air is, well, refreshing. I just love this time of year. The lilacs bloomed too, I have the fragrance of fresh cut lilacs throughout the house. If anyone tries to say the mind and body are not connected, they are flat out wrong. That is not to say a positive attitude can heal, nor a negative one kill but they certainly have an effect.

I plan to post a new video tomorrow on my Vlog on a good day, if all goes well, to show just how normal I am when I don't have symptoms. Here's to looking at the bright side of life. Thank you for all your prayers and support.

Much love,
Jen

Some corrections, and a work update

Good Morning, I wanted to start off by making some corrections to previous posts. The first was my description of how Mestinon works. It doesn't send more messages, it actually allows the acetylcholine to hang out at the neuromuscular junction longer allowing it to have a better chance of hitting on a healthy muscle receptor. I'm super tired today, which leads to brain fog and since I didn't write them down I will have to post the rest of my corrections at a later time. Oh, I remember one more, I had asked for prayer for my father in law, keep them coming. His surgery was supposed to be this week, it is now going to be at least 3 weeks out, maybe more, pray for a cancellation.

Our family had a wonderful day yesterday. We had a birthday party for John. It was a pool party for him and four of his friends. We timed it between check out and check in so they had the whole pool and a lifeguard to themselves. Five 10 year olds each armed with two squirt guns, goggles, and a large indoor water slide = FUN!


Back to the subject of work. My big meeting went very well. I will be putting in more hours because it has been decided that I may work from home!!!! The difference between waking up, logging on, forwarding my phone, taking a real rest during lunch hour, and hopping back on for a few hours versus waking up, getting dressed and prettied up, driving 25 minutes to work, and then working will give me a MUCH MUCH better chance at returning to work healthy and productive. I will start my new schedule tomorrow. Thank you everyone for your support, even though most of you don't know how to sign up to follow the blog:) At least you email your feedback.

Lots of Love,
Jen