Thursday, March 11, 2010

Silence is bliss...

So I have been silent for a few days and it didn't go unnoticed. It is a good thing. I think my new treatment and outlook are helping with my overall health. I also went from 5-6 hours a day working from home to 8 hours a day and I am tolerating it quite well. I still have my weak moments but comparitively less than last month. I think it also helps that the weather is changing. We had 6 straight days of sun and it was warm enough to open the windows. My bulb plants are sprouting too and that always gives me warm fuzzies. It means that Easter is on the way, I'm glad Cindy has gotten over her fear of bunny rabbits.

For an MG update I have had longer periods of strength daily. My worst moments are in the early morning and in the evening. I have a little bit of eye weakness but not enough for full on double vision most of the time and I am walking less like a drunken sailor and more like an elderly shuffler so that is an improvement. I spent the last two days sanitizing everything before I touch it because Cindy has a monster bug and I am terrified that I will catch it but I have felt pretty darn good...knock on wood.

The fear lies in what I know happens with my illness when I have a bug I go downhill fast, the last two times ending in multi-day hospital stays and all the warnings on my Imuran prescription. If I followed that I would live in a bubble so that is a bit freaky. The trick with these autoimmune disorders is to supress the sick, confused immune system without allowing real germ enemys from laying seed during the supression...hopefully I won't have anything to report in that arena.

That is about it for now. I am thankful that things are starting to return to some semblance of our "normal." We arent there yet but we are certainly on the road... I will try to commit to posting more regularly, it is just hard with the return of life, and that is a good thing.



  1. Hey girlie!
    Hope you are still feeling good! That's terrific! And to be able to go to work...WOW! Getting sick with MG IS scary... you just don't know. But like you said, you don't want to live in a bubble either!

  2. Im hoping that you're still doing as well, though its been nearly two weeks! Its always good to keep busy...