In less than 48 hours I will be recieving another treatment. The last two weeks have flown by. I wish I could say i haven't been blogging because I felt so fabulous I didn't have the time but that would be a flat out lie. I really didn't catch any relief this last time around but on a positive note, had I not gotten the IVIG, I am certain I would have ended up back in the hospital.
With the combination of the allergic reaction, the stress of my father in law's upcoming open heart, and worrying about my hubby and the rest of his clan I don't think I had a fighting chance. Well, the surgery is over and was a success so I am feeling much less stress, just weakness as I lead up to my treatment on Friday.
The last two weeks have been filled with many tough mornings getting out of bed, major vision issues, and leg weakness. I got a bit emotional on Monday which is very out of character for me but I was so weak that I couldn't make it to my son's conferences and I slept for 4 hours in the afternoon. Sometimes I feel so defeated. I just want to be a good mom and a good wife and when I don't have a say in the matter, well lately the waterworks start.
I got through that okay and have my confidence back that there is a light at the end of the tunnel. I almost thought about calling to see if I could get my treatment moved up but Friday works well in that it allows me to suffer any ill side effects over the weekend so I will leave it alone. Now, I just have to get through the next day and a half....
Hey Jen,
ReplyDeleteI hope you're feeling better...the whole emotionial roller coaster is part of the MG. I've always been a wear-your-heart-on-your-sleeve kind of girl, but MG makes it so much worse. The pure exhaustion of it! Sometimes I tell my husband I'm "cry tired." That means nothing is wrong, but I'm about to burst into tears!
And the mom guilt...isn't that the worst? All you want to do is be a good mom, and your own body betrays you and seems to fight against you.
I'm glad your father-in-laws surgery came out well!