Ahhh, what a week. So, rewinding to last week I only worked Tuesday. Wednesday my lovely mother in law drove me to Greektown Casino to stay at the new hotel, very nice by the way, and have some fun pre neuro appointment in Ann Arbor. While I can't post on any new exciting winnings I was able to play from noon until 1am on 40 dollars so Chuckie Cheese for kids provided well. The last three hours I lost the $100 I won while waiting for my momma in law to return from her gambling bliss. I had gotten too weak to walk the floors in search of her and was afraid if I left my seat she wouldn't find me or I wouldn't get a seat back to sit in. When she did come back I still had $34 so not too shabby.
Thursday I went to the neurologist and my liver enzymes were through the roof so off the Imuran and on to Cyclosporine. We'll see how that fares. On day 4 of it I had a major migraine with nausea and an all over awful feeling but I am now on day 5 and doing pretty well. He also said we aren't seeing good enough results with my IVIG schedule so I now have to have in home IV treatment every week for 6 weeks and if no improvement it is on to Plasmapherisis and if that doesn't work we talk thymectomy...which I am not in the mood for, If I can live the rest of my life without surgery I will be a happy woman. As it stands, pre-MG I have had too many surgeries to list on any doctor's office paperwork.
He did run a panel for other autoimmune diseases given the skin symptom (Livedo Reticularis with Reynauds) but he thought it was probably the result of the frequent IVIG and my bunk heart. Thankfully the AI panel came back clean so I think he is correct.
Tomorrow is going to be one doozy of a stressor with a chest echo at 9am to see how my heart is holding up with all this abuse and my dad goes in to have his upper right lung lobe removed...too long to explain here, just keep him in your prayers.
Other than that, and I think that is quite enough, things are staus quo around here. Going well with an a$$load of stress dumped on us. No such thing as a calm week in the Walsh household. I am hoping the new IVIG schedule brings brighter and stronger days and I am already feeling loads better without the Imuran wreaking havoc on my liver.
John is in soccer camp and loving it, band camp is next month so he has been quite busy lately. Cindy is getting cuter by the minute. Pat is up to his eyeballs in school and staying strong and focused to get his degree and I am just 'eeking out the strength I have to keep my job and our house afloat.
I would say I will post soon but whenever I do that, I fail so until next time I hope you are all well.
Hugs,
Jen
Hope you are having a wonderful week, Jen!
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