Sunday, July 18, 2010

A lesson learned...

I am happy to report that compared to the last 4 months, I feel like a new woman. Still a woman with MG, but so much better than I was. I was getting so depressed feeling like I was trying so hard to accept this illness and getting kicked down a hill day after day. Every morning I awoke to burning muscle pain and stinging joint pain, not to mention fatigue, nausea, stomach pain, and ultimately depression. Who wouldn't be depressed with a daily routine like that ending in severe muscle weakness and double vision by the afternoon clear into the evening?

Anyway, the lesson I learned is that just because I have this new illness I am still learning to live with it is important to listen to my body. Had I done that I might have called the doctor in April and explained how lousy I felt every day. Instead I convinced myself that it was just something I had to accept and that was how life was going to be for the rest of my days. I have many friends with MG and they have fluctuations in their illness and continue on so I just had to put on my big girl pants and get on with it.

Well, now I know it was not the MG but the Imuran. Most MGers to great on it, even though it takes up to 18 months to show success (also contributing to me chalking all of my problems up to the MG, I was supposed to be patient after all). Well, I am one of the small percentage of people whose liver does not tolerate Imuran, so I beat mine up for 4+ months giving the medicine the old college try.

I feel like I have stepped out of a dark fog. Yes, I still have weakness and double vision and pain but nothing like I have put up with for almost 1/2 a year. A lesson learned indeed, and I am so greatful that there isn't any lasting damage. Until next time - God Bless - Jen


  1. Well YAY! I've never been on Imuran. Are you going to try CellCept? Worked wonders for me. Thank God. What a wonderful thing to find out! Not that it took so long, but still! Awesome!!!

  2. Hey girlie! Long time no hear from! You doing okay??