Friday, July 13, 2012

The benefits of a breathing machine with Myasthenia Gravis

After two and a half years of living with this illness, my pulmonologist said, your diaphragm is so weak, you either need a Bi-Pap or a treach. So, I swiftly booked a sleep study to try to get the machine. Thankfully, I had enough "events" to get the machine. I love my bi-pap! Yesterday I was so weak I normally would go to the hospital, but I was able to use my bi-pap. What a great alternative! While I'm still run down today, I am hopeful with continued rest I wont wind up back in the hospital. In other news, I have had to file for SSDisability. I know, I should have done it long ago...but I'm stubborn and hopeful. I wanted to try to keep working and hoped for a remission. That's not in the cards. We have amazing friends who are running a fundraiser. Pray for our family I have been the sole source of income for our family and it is hitting hard. Some resources aren't available to us since we have a land contract vs. a regular mortgage. Anyway, I am again overwhelmed by the kindness of friends and strangers. We will get through this, we have to! Did I mention that voice recognition software is awesome, except when you have a slurry voice..well, that is it for today, my eyes and speech are going. I wish you all a wonderful, strong day! ~Jen


  1. This is what i am looking for ........really you made my day.
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    1. I'm so happy this helped Jones:)

      Cameron - I have full on double vision & accidentally marked your comment as spam. If you could contact me direct (via my profile) or my YouTube channel pajejoci - I would be happy to email you.


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  3. I read your blog and found the effective knowledge about benefits of breathing machines.Thanks for sharing this information.
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  4. Myasthenia gravis is a serious disorder causing progressive muscle weakness.