Monday, November 29, 2010

Fun Weekend

This is the start of a busy week and the kickoff to the Christmas season so alot is on our plate in the weeks ahead but I wanted to stop by and share what a nice weekend our family had. These are the times I feel blessed. My husband cooked a Thanksgiving feast, the kids had a wonderful time at my in-laws, I rested and everyone was just so calm and happy. Friday was a fun get together with some old classmates, a sort of pseudo reunion if you will. I was terrified. I have never been one to get nervous but since I have been ill, public outings with anyone other than my nearest and dearest is an extremely frightening venture. I have to worry if my face muscles will go out and freak everyone out. I have to worry if my mouth muscles will go out and I start to slur and drool (really appealing, let me tell ya!) Will my legs work or will someone have to help me walk, I didn't bring my walker, talk about a conversation piece that I don't want to have!

Thankfully, the myasthenia stayed at bay. Now the next morning I paid for it dearly but Friday night I looked perfectly normal, mission accomplished. Saturday I couldn't speak for the first 5 hours of the day due to talking too much the night before. I had to use the walker all day, my ankles just wouldn't work. And double vision all day long.

Those of you who battle "invisible disabilities" know what I am talking about. Those of you do not hopefully have some insight on what we go through and why we are unable to attend every event even though when you see us we "look so good" It takes days of preparation and rest to "look good" followed by days of looking like hell where we hide from the civilized universe:)

I think that is enough for today. This week brings my phyisical, the kid's chest echos (to make sure they didn't inherit my heart defect), band concerts, basketball games, can I come up for air now???

Blessings to you and yours,


  1. My goodness! Busy busy. I'm so glad you got to enjoy your night out, but I totally get the "payment" that comes with it! Keep us posted on the kids' echos!

  2. Hi! I'm Joanne and am feeling very fortunate to be able to join you in the "ride of myasthenia." We are almost exactly the same age with two kids. Thanks for a great blog and inspiration!