My story of living with a chronic neuromuscular disease.
Thursday, January 30, 2014
All Searching for the Same Thing - Remission
Hello friends and strangers,
I'm writing this early morning (2:15am) to be precise to address something that was on my mind. Over the 5 years I've been dealing with this pesky illness not many can pronounce I have learned a lot.
For instance, I've learned that not only are each of our disease courses different, each Dr. has his/her particular treatment plan.
I've learned that the city or state you live in can determine not only how you are treated but if you are treated. It's true! I have had friends choking, unable to stand or swallow sent home simply because the area they live in doesn't know how to treat myasthenia.
I've learned that relying on others for assistance is no longer a choice but a neccessity (very difficult for someone with a type A personality).
I've learned that in order to say yes to one person or activity,I have to say no to another. This has also taught me that saying no is a lot easier than I thought it would be.
Lastly, I've learned that some of the most important people in my life are people I've never had the chance to meet face to face.
I hope while you are on your journey you are able to learn something too. If you do, please share in the comments section.
Jen
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